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Long Journey on a Short Bus

Karen Murphy shares her experiences and challenges raising a special needs child.

All of Long Journey on a Short Bus:

The Club.
Last year just before Halloween we shopped for costumes. Each and every year for years before that I had lovingly and painstakingly sewed intricate costumes, despite knowing next to nothing about sewing, but now that Eric was of age to wear one I felt too exhausted to even consider sewing three complete... read more

Saving the world.
I dreamed about Eric this morning. In the dream he said to me, “I want some cold milk,” and then he walked into the kitchen and sat down on the floor in his customary spot where he waits for someone to get him a drink when he wants one. I know it was a dream... read more

Outside the Box
I have decided that in my next life I am going to be my son. Of all the people I know he is the one who seems to be having the best time. Eric goes to a special-needs preschool four mornings a week. Other than some cryptic hastily-scrawled daily notes on what he did that day (story: check;... read more

The support group didn't cover this part.
I have a secret. Well, it’s not really a secret. Anybody with half a brain can see that my son has Down syndrome. Of course, anybody with Down syndrome only has half a brain. Ba dum bum.   (I can tell those tasteless jokes because believe me, I have earned the... read more

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"We all suffer from the preoccupation that there exists... in the loved one, perfection." -- Sidney Poitier