Category Archives: Special Needs Kids

Perfect Birth

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It was going to be the perfect birth. Under soft gentle lighting, bathed in quiet contemplation of the perfection of this tiny soul we were welcoming to the planet, my son Eric was going to make his appearance. Everything had been planned: the warm-water birthing tub, the midwife, the music. Everything was going to be […]

My kid’s going to die. Is yours?

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The thing that sets parents of kids with special needs apart from other parents is simple. Death. The rule is that parents die before their kids do. That’s the way it’s supposed to be. Everyone knows it, and everyone accepts it. Kids are not supposed to die first. It’s against the rules. When you have […]

The Club.

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Last year just before Halloween we shopped for costumes. Each and every year for years before that I had lovingly and painstakingly sewed intricate costumes, despite knowing next to nothing about sewing, but now that Eric was of age to wear one I felt too exhausted to even consider sewing three complete Halloween costumes. Having […]

Saving the world.

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I dreamed about Eric this morning. In the dream he said to me, “I want some cold milk,” and then he walked into the kitchen and sat down on the floor in his customary spot where he waits for someone to get him a drink when he wants one. I know it was a dream […]

Outside the Box

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I have decided that in my next life I am going to be my son. Of all the people I know he is the one who seems to be having the best time. Eric goes to a special-needs preschool four mornings a week. Other than some cryptic hastily-scrawled daily notes on what he did that […]

The support group didn’t cover this part.

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I have a secret. Well, it’s not really a secret. Anybody with half a brain can see that my son has Down syndrome. Of course, anybody with Down syndrome only has half a brain. Ba dum bum.   (I can tell those tasteless jokes because believe me, I have earned the right to.) No, the […]